I take 2 Carb/Levo 25-100 MG pills 3 times a day. I would have no energy or be able to move if I didn’t take this medication. It works the best when I take 1/2 pill every hour when I’m at work or in public setting. The reason i do this is because theres side affects when taking this medication . The side affects are involuntary movements called Dyskinesia.
For me Dyskinesia is the most embarrassing part of Parkinson’s . People look at you strange. I’ve been trying to try new medication that might help with the unwanted dyskinesia. My neurologist asked me me to try a new extended release Carbo / Levo pill called Rytary. It works ok but it takes a while for the medication to work. For some reason it doesn’t seem to last long either.
There are so many ways that Parkinson’s make you feel, but first thing In the morning after all the carbo/levo medication wears off, its almost impossible to get out of bed. I have to roll across the bed and catch my self before I fall off. When I walk down the hall, each step is like i’m walking in mud or walking under water. Do you know the feeling of when your arm falls asleep and you can’t move it? Well thats how it feels when you have Parkinson’s.
I’m currently 42 years old and have been formally diagnosed with parkinson’s Nov 2016 . I ‘ve unknowingly been dealing wth symptoms of PD since 2010.
I am now dealing with moderate stages of the disease and it’s actually very hard to hide it.
This blog will be my private study of Parkinson’s Disease based on my first hand experience . I’m doing this so certain commonalities will be recognized, and my mission is to help with any progress or research advancements. I guess this is my way to pay it forward.